Thursday, September 4, 2008

Opinions please...

I've been thinking a lot lately about something. I feel like being pregnant with this baby, things are being done right this time. As far as checking the organs and stuff. I feel like with Caden, things were just overlooked. Like they did the sonograms too fast and checked him too fast and all that. A while ago, my mom was saying that we should consult a lawyer for medical malpractice. Let me tell you a short story, with the major details, and you tell me if you think it's worth a shot or not. My goal is not to get a bunch of money, or to be able to retire at age 25. My aunt said that we don't want another baby to have a missed diagnosis, or to pass away because of something that I could have prevented. I just don't know. It's kind of an ethical question.

When you're pregnant, you are supposed to have a sono around 18 weeks. This time, I was 17 weeks, 6 days. One day, no big deal (they checked the heart well). With Caden, I was 18 weeks, exactly, according to the date on the sono pics I kept, cross referenced with pregnancy calendars that show days and weeks of pregnancy. They didn't catch it with Caden, which we all know. When he was born, we were at the Birth Care Center, associated with Wesley Hospital. The pediatricians that checked him at birth said that everything was fine. They checked everything, listened to his heart, and everything was fine. The first doctor to check him was a male resident. Then the attending came in, and I remember it distinctly, because Caden was holding his head up, and she made a comment about how "is he a day old, or two months old?" and was laughing. She checked him too. Nothing.

When he was born, he was too fat to get circumcised, so we had to take him on Dec 15, at about 3 weeks old to get it done. They supposedly listened to him then, and heard nothing. It was not our regular pediatrician that did that, but a man (the attending pediatrician was a female). We weren't in the room when they snipped him, so I don't know if they checked him or not. They should have, if they didn't.

We took him in for his 6 week checkup, some time at the beginning of January 2007. Paul's mom went with me, and a female resident listened to him, saying that he sounded fine. The female attending came in a checked his hips like they do, and I remember her listening to his heart. Nothing.

From the time he was born to when he got diagnosed, he had labored breathing. To the point that he was "shrugging" with each breath. His nose was flaring and his head would bob. Well, now I know that that's a sign of heart defects, affecting the lungs. In the first two weeks of his life, he went from 9 lbs, 12 oz down to 8 lbs, 9oz (or very close to that). We had a nurse come to the house to check him when he was two weeks old, and she didn't detect anything either (that's how I know how much he lost). She said it was normal to lose a little bit of weight. Well, that's over a pound, and at the time, that was 12% of his birth weight. I don't know if that should have been a red flag or not.

He got diagnosed on a Monday (at 8 weeks old), cause over the weekend, he developed a terrible cough. Turns out it was heart failure, and his lungs were saturated, so he couldn't breathe. Well, He had an appointment scheduled for that Thursday, but I called and they were able to get him in that day. When we got to the pediatrician, the nurse checked (for the first time ever) his O2 sats. They were 74. She checked it like 3 times, and when the same female attending as last time came in, she listened to him, got a worried look, and left. They admitted us, so we went across the street to the hospital. We were there, getting treated for bronchitis, and a different resident (wow, I know) was just passing some time and asked if he could listen to him for a sec. He's the first one that ever heard the murmur. He was officially-and correctly-diagnosed later that night.

My thing is this-if someone would have caught his heart defect and he would have had surgery at two or three, even four weeks of life, then his lungs wouldn't have had a chance to get so diseased (why they thought it was bronchitis). He had his first crisis at the beginning of March because his lungs couldn't handle the increased (corrected) blood flow. If he never would have had the chance to go into heart failure at 8 weeks, then his lungs may not have diseased at all, therefore no crash, no ripping the patch back open, no heart cath, no second surgery, no resuscitation, no ECMO... yada yada yada. And who knows if his future surgeries and recoveries will be more difficult as a result of that???

What do you think? I think there's a statute of limitations, but I'm not sure what it is. I should look it up. I mean, is it even worth a consultation? My OB did everything he was supposed to, but did the sono tech screw up? Should she be held accountable? Which resident? There were 2-3 and I don't remember their names. We could find out, I'm sure. Should it be the attending, who was overseeing the residents? I just don't know. I feel like I wouldn't have had as much emotional stuff this past year and a half (and in the future) if he wouldn't have had all those complications.

I mean, who's to say he wouldn't have had any complications anyway? Maybe he would have, but maybe not. Not to mention the enormous medical bills (which have been paid for by insurance mostly). He shouldn't ever meet his lifetime maximum of 5 million, but he's already over 1 million. What if he gets a job somewhere when he's older, and that's their insurance and he can't get it cause he's over the maximum? I know, I'm projecting way too far out there, but I'm just asking.

Thanks for you input. I'm really not looking for a get-rich-quick thing. That's part of the reason I haven't done anything yet.

Thanks guys,

Ashlea

5 comments:

mommy to Kaden, Brody and angel Ava said...

First off, my appt is at 8:20, I will probably be there for awhile because I have an appt right after that. I should have something posted around noon, I hope.

About filing a lawsuit. Nate and I have went through the same feelings, for different reasons. It wasn't because they didn't detect something was wrong but because the hospital that initially had him said that they could handle it, but did not have the proper technology to do so. They kept him until he was very sick (which before that he was doing great), sent him to CMH and then he was put on ECMO (which most diaphragmatic hernia babies go on anyway) that night. When they got him he had less then 20% survival rate.

I know that it is VERY hard to understand why things happen as they do. I am not a lawyer (not anything close to one) but reading your post, I wonder why it was more then one person who did not detect it. Could it be because of neglegance (with more then one person) or could there be other factors? With it not being detected by the ultra-sound, I have heard of numerous stories that families had no idea their baby had a birth defect until after birth. It is a very hard decision, I know, but only you will be the one to determine if it is worth it or not. You know in your heart whether or not it was carelessness, nobody else will really be able to tell you that. I would say that is your call. There are still times that I think Nate and I should have went through it for Kaden and for the same reasons you want to...to spread the word and to make the hospital and staff acknowledge their poor practice. For us, at the time we were already in over our heads and I do not think I could have done much more. We did spread the word on our own however.

Good luck with your decision. You have a right to question the care your child received, especially if they are doing things differently then you remember last time. You will make the right decision for you.

Thinking about you all.

Recovery Guru said...

I went through some of the same thoughts that you are having too! I was very upset that they didn't find Sydney's heart problem when we had the ultrasound at 20 weeks. I was also very upset that they didn't catch it in the hospital when she was born, the nurses never came to check her SAT's the whole three days we where in the hospital. Sydney wasn't diagnosed until she was 2 weeks old, and had to be life flighted to Primary's. By then she was in heart failure. She was having a lot of symptoms that I wasn't really comfortable with (turning blue, not nursing, never waking up). When Sydney was born her doctor said that she had a heart murmur but that it was nothing to worry about and that it would eventually fix itself(yeah right!). It was at my recommendation that something wasn't right that the doctor finally decided to take a closer look at her heart.

After the whole nightmare of her surgery and her PTSS was over I finally realized that yes a lot of people dropped the ball when it came to my baby and her hearth condition but I was still holding her in my arms, she was alive, strong and beautiful! So yes, I thought about filing some type of suit, but what was the point when my tiny little baby was alive and healthy and her surgery was just a nightmare that was in the past.

I guess no one can really tell you what to do in regards to how to continue from here, but just fallow your heart. I am sure that you will make the decision that is right for you and your family!

Unknown said...

I do recommend a consultation with an attorney. At least it would offer a professional opinion. While not just one person might be negligent, an attorney could give you and experienced and educated opinion. GO FOR IT, and let me know. Love, Mom

Pam said...

Hi,
I don't know you but have found your site tonight. I have an adopted daughter who was born to a mom with syphilis. At her 6 months check up the doctor informed her that he was going to give her another dose of antibiotics just to "be on the safe side". She said the safe side of what and he proceeded to tell her that she was treated several months earlier for syphilis and this would just make sure that she didn't pass it on to the baby. She informed him that she had no idea that she had syphilis and that she had never been treated. Well they gave her the antibiotic but Jordan was born that night at only 30 weeks gestation. She was born with neuro syphilis. Her early birth was a result of the syphilis as well as her three month stay in the hospital and a g-tube placement. She was in therapy for two years after we brought her home. The adoption agency started a law suit in her behalf unbeknownst to us. When we finally got custody of her at age 2 1/2 they fully disclosed all the information to us. Well at age 5 years the law suit was finally over. The end result was that they awarded Jordan close to 1/2 million in damages. After the lawyers got their money and the insurance company took their percentage, Jordan was left with a stipen. Thankfully her life doesn't depend on the amount of money she received. She is a healthy happy little girl now. But the fact remains that the ball was dropped many times. The lab failed to report syphilis to the health depart, which is law. The lab sent the report to the doctor. The Physicians Assistant handles the reports and neglected to report it to the doctor and just put it in the chart. The doctor failed to read her chart until it was too late. Hopefully they have put some checks in place in their office.
You have to do what you think is right. It is not an easy battle for sure.
Take care,
Pam
www.caringbridge.org/visit/madison (this is our other little daughter we have adopted)

HeartMom said...

My daughter was born with Truncus Arteriosus Type 2 with a VSD and like you I did not know about her condition before she was born. She was born July 15th 2003 and on the 16th she was in a chopper on her way to the nearest Children's Health care center 3 hours away. Our doctor did not feel comfortable with what he was hearing. He told me it was probably just a normal murmur but he would feel better if she was seen by a specialist. I don't know if he told me that to be nice or not. She was diagnosed on the 17th, had surgery on the 30th and we came home Aug. 15th.
She was a cardio cath to expand her artery and a year and a half old. We are currently watching her closely for signs of heart failure because there is too much blood coming into her ventricular which will cause her heart to fail. It is very scary. I have not met other parents or adults dealing with this particular CHD. It would be nice to compare stories and experiences.
As for you considering a lawsuit... as much as I wish I would have known about her condition so I could have prepared better for the battle ahead, I am a little glad I did not know about her condition. If I would have known I am sure I would have worried and stressed during my pregnancy. Instead I was active and enjoyed it. I am not sure she would have been so healthy other than her heart if I had known.

good luck, it would be nice to compare and share...
Faith